MayRose Hurst Foundation for
Unfortunately, Nevada does not have a center for legally blind infants and toddlers. The MayRoseLili Foundation has been established to fulfill that need.
Cortical Visual Impairment
Cortical Visual Impairment is the leading cause of visual impairment in developed countries. CVI is not a condition that affects the eyes or optic nerves. CVI impacts the visual cortex in the brain. This results in the visual cortex having difficulty processing and interpreting the information that the eyes can see. CVI is most often caused by anoxia (lack of oxygen to the brain). The eyes of an infant with CVI usually look normal, although they will often not be able to visually track an object. CVI has been described as being similar to holding several (11 or 12) layers of crinkled Saran Wrap in front of your eyes. As you look around, remember that you are piecing the information togethor with a visual memory and experiential foundation that the infant has not yet acquired. CVI is also describe as being similar to looking at the world through a piece of swiss cheese. The Anchor Center for Blind Children provides extensive resources for children with CVI. You can visit their website at
anchorcenter.org
CVI and Glasses
The video, Cerebral Visual Impairment, is available from Vision Associates at
http://www.visionkits.com/. Dr. Hyvarinen addresses accomodations in the video as well as in the pamphlet that comes with the video. The video shows three examples of infants where reading lenses were used to help them accomodate on faces at near.
American Printing House for the Blind has a new sit on CVI:
http://www.aph.org/cvi/new.html
Boston Children's Hospital also has a site:
http://www.e-advisor.us/
Functional Vision Assessment Materials can be obtained by Vision Associates at
www.visionkits.com
The ISAVE vision assessment protocol for young children with multiple disabilities is available through American Printing House for the Blind (APH) at
www.aph.org
A booklet Cerebral Palsy and Visual Impairment in Children: Experience of Collaborative Practice in Scotland is available from their website of the Scottish Senory Centre:
http://www.ssc.education.ed.ac.uk/