| mayrose_medication_and_food_schedule.docx |
6:15 a.m.
1. Famotidine (Pepcid) (40mg/5ml susp) (10 mg) (1.25ml) (reflux) (15 min before exjade & food)
2. Trihexyphendile (Artane) (.4mg/ml elixir) (2 mg) (5ml) (spasticity) (3)Baclofen Susp (Gablofen) (5mg/ml susp) (5 mg) (1ml) (spasticity)
3. Clobazam (Onfi) (2.5mg/ml susp) (5 mg) (2ml) (seizures)
4. Poly-Vi-Sol Drops (50 ml bottle – A-1500IU, C-35mg, D-400IU, E-5IU, B1-.5mg, B2-.6mg, B3-8mg, B6-.4mg, B12-2mg) (1 ml) (multivitamin)
5. Vitamin D3 – 1200 unit liquid (240 ml bottle) (7.5 ml) (osteopenia)
6. Calcium (1250 mg/5ml liquid) (1250 mg) (5 ml) (osteopenia)
7. Flush Gtube w/ 10 ml water
8. Fleet Liquid Glygerin Suppositories (Dismotility) (every Saturday & Wednesday, and other days as needed)
6:30 a.m.
1. Exjade tablets (125 mg tablets) (3 tablets) (must be given 30 min before or 2 hours after food) (DO NOT CRUSH EXJADE)
2. Give Exjade WITH crushed tablet of Lactose Fast Act Relf Cap (60s cap) (1 tablet) & ½ cup Orange Juice (room temperature)
3. Use 20 ml water to give remainder of residue & flush with 10 mls water
7:00 am
1. 300 ml gtube blended diet by pump or manipulation over 20 to 30 minutes
2. Flush with 10 mls water
8:00 am
VENT 15-30 minutes
8:30 am
1. Miralax (17g) 4 teaspoons must be mixed w/8 oz water (dismotility)
2. Flush with 10 mls water
11:00 am
1. 300 ml gtube blended diet by pump or manipulation over 20 to 30 minutes
2. 60 ml water by gravity
12.00 pm
1. Trihexyphendile (Artane) (.4mg/ml elixir) (2 mg) (5ml) (spasticity)
2. Baclofen Susp (Gablofen) (5mg/ml susp) (3.75 mg) (0.75ml) (spasticity)
3. Flush with 10 ml water
12:30 pm
VENT 15-30 minutes
3:00 pm
1. 300 ml gtube blended diet by pump or manipulation over 20 to 30 minutes
2. 60 ml water by gravity
4:00 pm
VENT 15-30 minutes
5:00 pm
1. Miralax (17g) 4 teaspoons must be mixed w/8 oz water (dismotility)
2. Flush with 10 mls water
5:30 pm
1. Triamcinolone Acetonide nasal spray (1 spray per nostril) (seasonal allergies)
2. Famotidine (Pepcid) (40mg/5ml susp) (10 mg) (1.25ml) (reflux)
3. Trihexyphendile (Artane) (.4mg/ml elixir) (2 mg) (5ml) (spasticity)
4. Baclofen Susp (Gablofen) (5mg/ml susp) (7.5 mg) (1.5 ml) (spasticity)
5. Clobazam (Onfi (2.5mg/ml susp) (5 mg) (2ml) (seizures)
6. Calcium (1250 mg/5ml liquid) (1250 mg) (5 ml) (osteopenia)
7. Zyrtec-Cetirizine (5 mg/ 5ml elixir) (5 mg) (5 ml) (seasonal allergies)
8. Flush with 10 mls water
6:00 pm
1. 300 ml gtube blended diet by pump or manipulation over 20 to 30 minutes
2. Flush with 10 mls water
7:00 pm
VENT 15-30 minutes
8:00 pm
1. Give 670 mls water over 9.5 hours using pump (70 mls/hour) Vent simultaneously
2. (prevents dehydration, gas and vomiting caused by too many daily liquids )
As Needed
1. Zofran-Ondansetron (4mg/5ml sol) (3 mg) (3.75 ml) every 6 hours) (Nausea)
2. Bifidobacterium-lactobacillus (Kidslac Probiotics packet by mouth once a day)
Important: Must mix 2 ounces water per teaspoon of Miralaz--this water cannot be substituted with daily water
Note: If MayRose’s stoole is not ice cream consistency, consult with mom re Miralax dosage
Note: Food must be given at 4 hour intervals over 20-30 minutes to reduce reflux and vomiting
Adverse Reactions: Ativan, Intralipids, Sulfameth-trimeth, Flagyl, Protonics, Lanzoprazole (any drugs with a listed adverse effect as possible pancreatitis--no matter how small the risk)
1. Famotidine (Pepcid) (40mg/5ml susp) (10 mg) (1.25ml) (reflux) (15 min before exjade & food)
2. Trihexyphendile (Artane) (.4mg/ml elixir) (2 mg) (5ml) (spasticity) (3)Baclofen Susp (Gablofen) (5mg/ml susp) (5 mg) (1ml) (spasticity)
3. Clobazam (Onfi) (2.5mg/ml susp) (5 mg) (2ml) (seizures)
4. Poly-Vi-Sol Drops (50 ml bottle – A-1500IU, C-35mg, D-400IU, E-5IU, B1-.5mg, B2-.6mg, B3-8mg, B6-.4mg, B12-2mg) (1 ml) (multivitamin)
5. Vitamin D3 – 1200 unit liquid (240 ml bottle) (7.5 ml) (osteopenia)
6. Calcium (1250 mg/5ml liquid) (1250 mg) (5 ml) (osteopenia)
7. Flush Gtube w/ 10 ml water
8. Fleet Liquid Glygerin Suppositories (Dismotility) (every Saturday & Wednesday, and other days as needed)
6:30 a.m.
1. Exjade tablets (125 mg tablets) (3 tablets) (must be given 30 min before or 2 hours after food) (DO NOT CRUSH EXJADE)
2. Give Exjade WITH crushed tablet of Lactose Fast Act Relf Cap (60s cap) (1 tablet) & ½ cup Orange Juice (room temperature)
3. Use 20 ml water to give remainder of residue & flush with 10 mls water
7:00 am
1. 300 ml gtube blended diet by pump or manipulation over 20 to 30 minutes
2. Flush with 10 mls water
8:00 am
VENT 15-30 minutes
8:30 am
1. Miralax (17g) 4 teaspoons must be mixed w/8 oz water (dismotility)
2. Flush with 10 mls water
11:00 am
1. 300 ml gtube blended diet by pump or manipulation over 20 to 30 minutes
2. 60 ml water by gravity
12.00 pm
1. Trihexyphendile (Artane) (.4mg/ml elixir) (2 mg) (5ml) (spasticity)
2. Baclofen Susp (Gablofen) (5mg/ml susp) (3.75 mg) (0.75ml) (spasticity)
3. Flush with 10 ml water
12:30 pm
VENT 15-30 minutes
3:00 pm
1. 300 ml gtube blended diet by pump or manipulation over 20 to 30 minutes
2. 60 ml water by gravity
4:00 pm
VENT 15-30 minutes
5:00 pm
1. Miralax (17g) 4 teaspoons must be mixed w/8 oz water (dismotility)
2. Flush with 10 mls water
5:30 pm
1. Triamcinolone Acetonide nasal spray (1 spray per nostril) (seasonal allergies)
2. Famotidine (Pepcid) (40mg/5ml susp) (10 mg) (1.25ml) (reflux)
3. Trihexyphendile (Artane) (.4mg/ml elixir) (2 mg) (5ml) (spasticity)
4. Baclofen Susp (Gablofen) (5mg/ml susp) (7.5 mg) (1.5 ml) (spasticity)
5. Clobazam (Onfi (2.5mg/ml susp) (5 mg) (2ml) (seizures)
6. Calcium (1250 mg/5ml liquid) (1250 mg) (5 ml) (osteopenia)
7. Zyrtec-Cetirizine (5 mg/ 5ml elixir) (5 mg) (5 ml) (seasonal allergies)
8. Flush with 10 mls water
6:00 pm
1. 300 ml gtube blended diet by pump or manipulation over 20 to 30 minutes
2. Flush with 10 mls water
7:00 pm
VENT 15-30 minutes
8:00 pm
1. Give 670 mls water over 9.5 hours using pump (70 mls/hour) Vent simultaneously
2. (prevents dehydration, gas and vomiting caused by too many daily liquids )
As Needed
1. Zofran-Ondansetron (4mg/5ml sol) (3 mg) (3.75 ml) every 6 hours) (Nausea)
2. Bifidobacterium-lactobacillus (Kidslac Probiotics packet by mouth once a day)
Important: Must mix 2 ounces water per teaspoon of Miralaz--this water cannot be substituted with daily water
Note: If MayRose’s stoole is not ice cream consistency, consult with mom re Miralax dosage
Note: Food must be given at 4 hour intervals over 20-30 minutes to reduce reflux and vomiting
Adverse Reactions: Ativan, Intralipids, Sulfameth-trimeth, Flagyl, Protonics, Lanzoprazole (any drugs with a listed adverse effect as possible pancreatitis--no matter how small the risk)
