Pediatric Rehabilitation at Denver Childrens Hospital
12/1/08 - 11/25/08
When MayRose was diagnosed with diffuse brain damage at the Summerlin ICU, her caregivers learned that that the medical field had not yet developed a way to repair brain injuries. Infants, with proper rehabilitative therapy, however, can make significant advances. MayRose spent three weeks in December 2008 at an inpatient pediatric rehabilitation unit located at The Childrens' Hospital in Denver, Colorado. http://www.thechildrenshospital.org/conditions/rehab/index.aspx
Mayrose received intensive physical therapy (for large muscle development), occupational therapy (for small muscle development), and speech therapy (for speech and feeding development). The therapists taught her caregivers how to assist in the therapy daily. They strongly recommended that MayRose receive therapy from caregivers inside her home upon discharge, instead of being taken to an office that provides therapy. Unfortunately, very few providers in Las Vegas provide at home rehabilitation services. Additionally, very few therapits in Las Vegas specialize in infant rehabilitation, which is a category quite different from that involving older children. After an extensive search, the Denver therapists and MayRose's caregivers were able to locate therapists in Las Vegas who had experience with infant therapy and were willing to treat MayRose at her home.
While at the Denver Children's Hosptial, MayRose's red blood count continued to drop. Hematologists were consulted. Finally, seven months after her birth, MayRose was diagnosed with the underlying condition that had been at the root of her problems. The hemotologists reviewed the records of MayRose's prior hospitalizations and discovered that MayRose had never produced red blood cells, and in fact suffers from a rare blood disorder called Diamond Blackfan Anemia.
Although MayRose is being treated by local doctors and therapists, MayRose also continues to return to Denver Children's Hospital four times a year for continued monitoring by the care providers who set her on the proper trajectory for recovery from her brian damage and management of her anemia.
Mayrose received intensive physical therapy (for large muscle development), occupational therapy (for small muscle development), and speech therapy (for speech and feeding development). The therapists taught her caregivers how to assist in the therapy daily. They strongly recommended that MayRose receive therapy from caregivers inside her home upon discharge, instead of being taken to an office that provides therapy. Unfortunately, very few providers in Las Vegas provide at home rehabilitation services. Additionally, very few therapits in Las Vegas specialize in infant rehabilitation, which is a category quite different from that involving older children. After an extensive search, the Denver therapists and MayRose's caregivers were able to locate therapists in Las Vegas who had experience with infant therapy and were willing to treat MayRose at her home.
While at the Denver Children's Hosptial, MayRose's red blood count continued to drop. Hematologists were consulted. Finally, seven months after her birth, MayRose was diagnosed with the underlying condition that had been at the root of her problems. The hemotologists reviewed the records of MayRose's prior hospitalizations and discovered that MayRose had never produced red blood cells, and in fact suffers from a rare blood disorder called Diamond Blackfan Anemia.
Although MayRose is being treated by local doctors and therapists, MayRose also continues to return to Denver Children's Hospital four times a year for continued monitoring by the care providers who set her on the proper trajectory for recovery from her brian damage and management of her anemia.