Ongoing Hospitalizations and Doctors Appointments

MayRose was born three months premature at Sunrise Childrens Hospital NICU on May 14, 2008. She remained there until she was discharged as being a "healthy baby" on August 2, 2008. During her first three months at home, she began tracking and had an MRI that showed her brain to be normal. On October 29, 2008, she went into anemic shock and was rushed to the Summerlin ICU around the corner from her house. During her stay at the Summerlin ICU, it ws determined that she had suffered diffuse brain damage from the anemic shock. As a result, MayRose was admitted to Denver Childrens Hospital Pediatric Rehabilitation unit where she was seen by a Physiatrist (rehabilitation medicine doctor) and several rehabiliation specialists.
 
As a result of MayRose's various challenges during the year of her birth, she has since been hospitalized eight times in 2009, including in January, twice in February, March, May, July, August and September. She also was hospitalized in January 2010. Most of her hospitalizations were due to her contracting a virus which raised her body temperature and lowered her white blood count. She remains in the hospital, on average, for five days at a time until her white blood count increases and her temperature returns to normal. MayRose is on numerous medications.

MayRose's pediatric brain injury caused developmental delays, cortical visual impairment, and silent seizures. In addition to receiving rehabilitative therapy four times a week, MayRose has approximately ten doctors appointments a month. She is seen regularly by multiple care-providers, including a Pediatrician, Hematologists, Gastreoenterlogists (reflux), a Pulmonologist (lungs), a Physiatrist (rehabilitation), a Neurologist (brain injury), an Orthopediologist (bone development), and Opthomologists (visual impairments). Her caregivers have become actively involved with the Sarah Jane Brain Foundation.

Due to her prematurity, MayRose is at risk for continuing Repiratory Syncitial Virus (RSV) during the flu season and she receives monthly synergist shots. As a result of MayRose's Diamond Blackfan Anemia, she must receive regular neupogen shots to prevent her from becoming immune compromised. She also is followed by an orthotic specialist who fitted her for leg braces prescribed by her physiatrist.