MayRose has to take several medications to help control her various conditions:
1. Famotidine-Pepcid (40mg/5ml) 1.25ml (10 mg) 2x daily at 6:30 am & 6:30 pm (reflux)
2 Gablofen-Baclofen (5 mg/ml susp) 1.5 ml (7.5mg) 3x daily at 6:30 am, 12 pm, & 6:30 pm (Spasticity)
3. Exjade-Deferasirox (500 mg tablet) 1 tablet (500mg) 1x daily with 4 oz orange juice at 6:00 am (Iron overload)
4. Lactose Fast Act Relf Cap (60's Cap) 1 tablet taken daily with exjade (lactose intolerance)
5. Triamcinolone Acetonide (Nasal Spray) One spray per nostril, 1x daily at 6:30 pm (Seasonal Allergies)
6. Onfi-Clobazam (2.5mg/ml susp) 2 mls (5mg) 2x daily at 6:30 am & 6:30 pm (Seizures)
7. Poly-Vita (.25 mg/ drops 50 ml) 1 ml 1x daily at 6:30 am (daily vitamin)
8. Miralax-Polyethylene Glycol 3350 Powder 2x daily, 1 teaspoons w/ 2 ounces water at 6:30 am and 1 tablespoon in 4 ounces water at 6:30 pm (dismotility)
9. Vitamin D3 (400 unit/ml) 1.5 ml 1x daily at 6:30am (osteopenia)
10. Calcium Carb (1250 mg) 5ml 2x daily at 6:30 am and 6:30 pm (osteopenia)
11. Zofran-Ondansetron (4mg/5ml sol) 3.75 mls (3 mg) 4x per day as needed (nausea)
12. Diastat AcuDial (diazempam rectal gel) 7.5 dose given if siezure lasts more than 5 minutes.
NOTE: Adverse reaction to Ativan (Lorazepam). Mayrose becomes agitated and hostile.
Port: MayRose has had a device implanted into her mid-chest called a Port which is used to draw and give blood. It is a Power Port isp Titanium device w/6 Fr. Attachable ChronoFlex Catheter Silocon Filled Intermediate. REF 1706060 LOT REYE2285.
G-Tube: MayRose receives the main source of her nuitrician through a G-Tube. She uses a Mini-One size 12 French, 1.4 cm, with 5 cc of distilled water in the balloon.
Adverse Reactions to Medications
1. Ativan (Lorazepam) - agitation and hostility
2. Intralipids - coagulation, lowered platelets, high blood pressure
3. Sulfameth-trimeth antibiotic for citrobacter UTI (caused pancreatitis)
4. Flagyl antibiotic for C-Diff (made pancreatitis numbers increase)
5. Protonics, gut medication (possibly made pancreatitis numbers increase)
6. Prevacid-Lanzoprazole - reflux (potential adverse reaction of panceatitis)
7. Trihexyphenidyl - actual adverse reaction acute kidney injury
NOTE: Do NOTE give any medications with pancreatitis as a potential adverse reaction.